Life is Great

June 30, 2011

Some runners don't like to run the same route over and over again, because repetition is boring. I agree, except when the route is incredibly beautiful, like a mountain trail, because genuine beauty doesn't get boring.

Test Results:

That's how I feel about the pomalidomide drug study at Mayo Clinic - I'm not bored. After the 43rd 28-day cycle, my myeloma is still stable, and that's beautiful, life is good. IgG is down a little, M-spike down a tenth, and Lambda light chains are down significantly. They go up, then they go down. I'm learning to go with the flow, which is especially easy when the flow is down, like today.

Actually, Lambda Light Chains dropped by 31%, while Kappa Chains actually went up a little, both going in the right direction. These are important cancer markers for some myelomiacs, and this sort of change would be good news for them. Light chains are not the best markers for my myeloma, though, so I don't know how much it means. Anyway it's certainly not bad news.

Creatinine is not a cancer marker, but is the primary kidney marker and is checked every month because myeloma can cause kidney failure. Creatinine was near the high end of the range for the second successive month. However, Dr RH explained that creatinine is a byproduct of muscle breakdown, which is happening to everyone all of the time but may be higher than normal in my case because of the running - I ran two marathons in the last 28 days, one just 12 days ago. So I won't worry unless it goes quite a bit out of range. Meanwhile, more water would probably be good. Kidneys like water. Alas, Dr RH didn't think that beer would do quite as well.


For this cycle I dropped two supplements: (1) Marrow Plus, Chinese herbs for bone marrow; and (2) Genistein, a supplement which may have an anti-tumor benefit but also some side effects. I also added a supplement containing L-Arginine 500mg and L-Ornithine 250 mg. Results: Some Current Test Results:

Test    Apr 07    May 05    Jun 02    Jun 30     Remarks
M-spike g/dL 1.0 1.0 1.1 1.0 Best tumor measure?
IgG mg/dL 1080 1130 1110 1070 Best tumor measure?
L FLC mg/dL 2.08 3.07 2.52 1.74 L Free light chains
Calcium mg/dL 9.9 9.4 10.4 10.0 High
Creatinine mg/dL 1.2 1.1 1.2 1.3 Kidney, OK
HGB g/dL 15.5 14.7 15.2 14.8 Hemoglobin, good
RBC M/uL 4.27 4.11 4.13 4.28 Red cells, low
WBC K/uL 4.9 4.6 4.9 3.6 White cells, low
ANC K/uL 1.90 1.90 2.40 1.17 Neutrophils, low

Related Links:

My Myeloma     A discussion of my myeloma, not very technical.
My Treatment History Not technical.
My Test Charts Graphic displays of several key test results over time.
My Test Result Table Somewhat technical. Best with a wide browser window.
My Supplement Regimen With links to where I buy them.

Hot and humid today, 98 at our house. This photo from April reminds us of cooler days:
April 20, 2011