Internet Resources for Multiple Myeloma
Prepared by Minnesotadon
December 11, 2007
Advocacy, Support, and Treatment:
Web Site |
Name |
Purpose |
American Cancer Society |
Everything |
|
American Society of Hematology |
Support hematologists |
|
Beating-myeloma.org |
Non-traditional treatment |
|
Cancer Source |
Information |
|
Cancer Symptoms |
Manage symptoms (nurses) |
|
Clinical Trials list by NLM |
List clinical trials |
|
International Myeloma Foundation |
Advocacy, research, support |
|
Leukemia & Lymphoma Society |
Research |
|
Mayo Clinic |
To be the best |
|
MMSupport.net |
Online support and advocacy |
|
Minnesota Myeloma |
Minnesota support group |
|
Minnesota Oncology Hematology PA |
Treatment |
|
Multiple Myeloma Research Foundation |
Research |
|
National Cancer Institute |
Clinical trials and more |
|
North Texas Myeloma Support Group |
Testing history templates |
Financial Assistance:
Web Site |
Who |
What |
Celgene Patient Support Coordinator |
Revlimid, Thalidomide payment |
|
Chronic Disease Fund |
Underinsured assistance |
|
HealthWell Foundation |
Underinsured assistance |
|
Leukemia & Lymphoma Society |
Co-pay assistance |
|
Medicare Matters, Ntl Council on Aging |
How to qualify for “Extra Help” |
|
Needy Meds |
Mostly advice on getting help |
|
Partnership for Prescription Assistance |
Underinsured assistance |
|
Patient Access Network Foundation |
Co-pay and deductible help |
|
Patient Advocacy Foundation |
Co-pay assistance |
|
Patient Services Incorporated |
Premium and co-pay help |
|
Rx Assist |
Advice on prescription help |
List Servers:
Web Address |
Who |
IMF and ACOR, the Association of Cancer Online Resources |
|
Multiple Myeloma Association Mailing List (Beth) |
Blogs (mostly USA):
Web Site |
Blog Name |
Who |
Best Day of the Year |
Sunshine |
|
Beth’s Myeloma Blog |
Beth (ISP, very savvy) |
|
Cindy’s MM Blog |
Cindy |
|
Dennis Hanson |
Dennis Hanson |
|
Gary’s Myeloma Blog |
Gary Derck |
|
Laughing Plasma Cells |
Scott |
|
Let the Healing Begin |
Eve |
|
Margaret’s Corner |
Margaret in Italy (prolific) |
|
My Kentucky Home |
Susan |
|
Myeloma Hope |
Don (me) |
|
Sherry’s Cancer Cookies |
Sherry Wilder |
|
Susan’s Myeloma Journey |
Susan |
|
Susie Hemingway - Power Within |
Susie for Hamada, poetry |
|
The Adventures of Cancer Girl |
Karen |
|
The Beast |
Teresa, for Richard |
|
Tracking Kent’s Progress |
Kent Briggs |
Unconventional (alternative) Treatment:
Web Site |
Name |
What |
Beating-Myeloma.org |
Non-traditional treatment |
|
Cancer Treatment Centers of America |
Conventional and alternative |
|
Low-Dose Naltrexone |
Low-dose naltrexone |
|
M.D. Anderson Research Center |
Curcumin trial |
Personal:
Item |
What |
Who |
Test Results Record |
||
Test Results Record |
||
Test Results Record |
||
Test Result Table (Don’s) |
|
|
Test Result Table (Don’s) |
Old example |
|
Don’s |
|
|
Don’s |
|
|
Don’s |
|
|
Don’s |
|
Refer to myelomahope.blogspot.com for Don’s most-recent charts and results.
